dialogue to self about meds and life, i am HIV positive with Hep C

Thursday, November 17, 2005

hullo world. well i have been to lousyville and back. and it went real well. i had a great time. went to the track...churchill that is. then on the same day went to see the cardinals play. life does not get any better. i even cashed in an box exacta ticket...yippee. first time for that. it was nice to see some old friends...and of course...there was not time to see everyone that i had planned... maybe next time.. which should be next summer. i have a niece that is graduating high school and will be taking her up for a visit. i think.

well again i also saw U2 last nite. i must be living right or something. it was an awesome show as only U2 can do. it was a blast. they even played a song that me and zoe danced to at our wedding..."For the first time".. it brought tears to my eyes. i had her on my mind a lot also. the last time i saw U2 was with her. so now i am having to see shows with out her. just one more thang to go through with out her. and it has been 2 years now. i was able to take come flowers out to her when i was there in lousyville. it was nice, at least therapuetic. i do miss her so.

but i am doing alright over all. not much else is happening. after U2 last nite i have nothing on the agenda for the foreseeable future. just hang out and work. try to save some money for sure.


well peace and love to all. capt.

Monday, November 07, 2005

hello world. well lets see where was i last time i was on here....i have been to treasure island and met some nice people but no special lady friend. oohwelll......i am then going to lousyville this week. it is zoe's anniversary. she has now been gone for 2 years. seems like yesterday... i read my blog and it helps me see that i was aware of the situation when it was happening. i am going to paid her a visit on sunday. her actual date. also a very close friend of mine is turning 40 up there in corydon. so she is having a big old party.... yipppeee.


i gave blood on halloween...it seemed only like the thing to do. i also went as a devil in blue dress for halloween. i was kinda of drag. just no tittys. i did not go that far...i did paint my face red....

some liked it. it took about 2 days it to wear all the way off.


i have had no more cheek injections since my first time. i am going to get it done again i think later this month.

i will at least check in to tell you all my blood count. i think i do not see any doctors until next month. they usually give me counts then. i know my hep c is gone for good. i am also on a lot of vitamins and other pharma products from the healthy PWA meetings. they have been nice meetings. you get to see others and then also the nutrional stuff they give us.


also U2 is in about 2 weeks. less then that really. i week from wednesday. i am going out tomorrow to see if i can win some from a radio station down here....be there


well, i am rambling on....not much to report. much peace and love to all. captcosmos

Tuesday, October 18, 2005

hello, been a little bit since i have been on here. not much is new. i am sitting here watching the show and series cosmos...my favorite series. my dad and i would watch this and compare notes on it the next day. they have remastered it for the digital age. and did you know that carl sagan was a pot head. just something i thought i would share. i am not doing much. waiting for yet another hurricane...maybe this weekend. wait and see...other than that, i am off to treasure island next week for the get together. hope something comes of it. i almost went to see this woman in pompano beach, but decided to wait and see what next week brings. and i am going to louisville next month as well....so i need to watch the money flow.


i am feeling alright. been doing this cleansing solution for your liver and takin this liquid miracle stuff. i give blood next week. i will report back. this lady in pompano was positive as well. we met on poz.com.

watched the movie million dollar baby tonite.. another reminder of zoe. how she dies at the end. well i do miss her. my heart is getting better and stronger each day.

what else is happening, well we are still kind of slow at work. but it should pick up soon.

my power supply went out today on my pc. i went to sleep, or took a nap and was wondering what could be wrong with my machine and when i awoke it dawned on me, that the power supply was bad. replaced it and wam here i am...

well the little russian girl wants to come and see me, she saids. she has asked for money now to help her get her. not sure i believe her or not. i am not sending any money...not yet anyway....lol.

well much peace and love to all. rev. vernon.
cya 1 ho.

Sunday, October 09, 2005

hello world. checking in from sunday afternoon, spent watching the bucs lose thier first game of the year. i am not too bad. my older sis was in town visiting this weekend. we had a wild time to say the least. went to ladies nite on thursday and then down into sarasota on friday nite. stayed home on sat. nite. i am feeling some what well. i have restarted the meds, again. i may have mentioned this or not. i started on august 8th. i am doing the 1 week on/1 week off. my docs don't like that...but we will see how it goes. i am on this new 1 pill drug. it has viread and 3tc together. kinda strong for the 3tc. i was on the 150mg when i started the week on/week off routine. i also started this alternative meds. it is like a liver cleaner and it helps with your GI tract as well. it is a powder that does not taste good, but i mix with my metamucil (sp). it is not too bad. and then this is this other liquid that has the flow of 10W40 motor oil. it is phasfolin. it is like major extra new cells. it helps with all sorts of stuff for your body. it is major shit. i am looking forward to my next blood count. i missed it last week, so i need to call them this week and set up another blood time. it is weird down here, they have you set up an appointment to give blood. whatever. i am also on this high bloodpressure meds. not sure what is up with that. i have not taken my BP any time as of late.

still single...still looking...lol. i am off to treaure island for a retreat this month. i hope. i need to make some sales though. the weather down here has been dry. september was the driest september since 1912. and then hopefully get some snow birds down here within the next month. that will help. i am making it though.


i am also scheduled to coming up to lousyville next month, for zoe anniversary. i plan to be there for that. i am coming in on a thursday nite and there is a cardinal game friday nite. so i will be there for that. for sure. then my dear friend miss t. is turning 40 and she is having a big old party. so that should be fun..

well gtg. peace and love to all. capt. vernon.

Monday, September 26, 2005

happy monday to all. well it was a shitty weekend for football. at least on cardinal planet. it was a quite shitty that they did not even show up to play. they did not take south fl. serious. it was ugly.

well my new cheeks have gone down a little bit. it is still better than where i was. so i am looking forward to getting the other treatments. just wished you did not have to wait 6 weeks between treatments. but the time will go by quick enough.

got a lot on my calendar in the next couple of months. next month going to spend the weekend at treasure island. there is a gathering of positive people. with any luck i might even meet some one. lol.

then in november i will be in lousyville for zoe's anniversary. hard to believe she has been gone now for 2 years, or will be then. i still miss her, and i still spend a lot of time alone. but i am getting on with life. what else is there to do, right?

i have not talked to miss 1 ho in awhile either. she is having a rough time as of late. i do hope that she finds peace one day.

as for me, well i am doing alright. did the st. pete aids walk on saturday. it was nice to get out and meet some people. well my chicken is on the grill. gotta go. peace and love to all. capt. vernon.

Thursday, September 22, 2005

well i am back. i am sitting here getting ready for another thurday nite ladies nite at the distillery. i did see the doctor yesterday. my tcells only went up like 22 points. they are now at 223, but my viral load went undetectable and that is only after3 weeks of being back on treatment. i saw a different doc yesterday. what is that like 3 docs in 3 months. not good. but yesterday this was another lady doc, so that was ok. you know me and the lady docs get along much better. or something. my hep c viral load is still undetectable. and that has been since may 7, 2001 since i last had my interferon in me. so that virus is no doubt gone from my system. only about 40 % of hivers with hep c are able to clear the virus from thier system. 1 of the lucky ones, i guess. it is nice to know. my first doc down here would not draw that test, she would say, "well we are not going to treat it, if it comes back positive". so i had another doc draw for that test. i will my doc in KY know about this test. yippee.

on other news...well get this....i had my first injection in my cheeks this week. i had some plastic surgery, you could say. there is this poly l lactic something that they inject into your cheeks, for people with sunken cheeks like me. it is called facial lipoatrophy. so i had this done on tuesday nite. you have to have like 2 to 4 treatment sessions, depending how bad your cheeks look. i am going to have 4 treatments. and you have to wait like 6 weeks between treatments. so mine will go into something like next march or so until i am done. but then the results last about 2 to 3 years. i am pysch. i almost don't look sick any more. the first treatment will not really hold, you might look good for like 4 days, but it goes back down. so i am expecting that. but if the end results look like me now...then look out world. again....something for me. i am trying to do things for myself in my new life down in florida.


well again i hope this finds every one doing well up north. i am going to plan on being in town for november 13th weekend. that would be zoe anniversary, so i think i need to be there this year. also there is this other person who is turning 40 up there and she would like for me to be in town. so i am going to recycle on my 40th bday crap. lol.

well much peace and love to all.capt. vernon.

Sunday, September 18, 2005

well i am back. been some time since i was on here. where to begin at. last week i was up in asheville, NC. helping my sis and bro in law move. they are moving up there for good next june. after the school year. i had a good time up there. ought to be a nice town for them. i look forward to visiting them there. lots of stuff to do. i went out for about 3 hours in the blue ridge mountains. did some hiking and drove on the blue ridge parkway. really really nice. then next summer will do some white water rafting up there. that ought to be fun.

you might be wondering what will happen to the business that i am working at. i may have mentioned this already, but he is going to put me in charge of running the business. yippee. they were going to sell it, and they still might, but there are more benefits for them, if they keep it up and running. which i hope i can do....i know i can. and there is going to be more money in it for me....again yippeee....

as for my health. well they have scheduled me again for another doctor. in the last 3 visits to the clinic i have seen 3 different doctors. irks the hell outta of me. but i do get my bloodwork back next time. i see a doctor this week, so i will get back on here and tell ya about the latest counts.


as for other news, well the country i am convinced is going to hell in a hand basket. there was this outrage about bush not responding to katrina and his crony that was in charge of FEMA. well that bonehead got there when the confirmation committee accepted bush's nominee. they all voted for him. so congress should be somewhat to blame as well. george w does not know how to govern and the rest of the country put him in there for another 4 years. GOD is there no common sense in the frickin country any more. we need a regime change here at home. please help the red cross or any other charity for the folks in gulf area.


well enough from me. i was glad i got to see new orleans this year. i plan on going back next spring for the jazz fest, if they have it.

i have been quite busy this summer. lets see i went to new orleans, twice in may, in lousyville in july and then the keys in august and now asheville in september. i have decided to go back to lousyville for a visit. i will be up there for zoe's anniversary in november. stay tuned...


well much peace and love to all out there..today i am hosting a positive connection day out for socializing. we are going to be bowling. my idea. will let you all know how it turns out.

for now peace out....rev. vernon.
well i am back. been some time since i was on here. where to begin at. last week i was up in asheville, NC. helping my sis and bro in law move. they are moving up there for good next june. after the school year. i had a good time up there. ought to be a nice town for them. i look forward to visiting them there. lots of stuff to do. i went out for about 3 hours in the blue ridge mountains. did some hiking and drove on the blue ridge parkway. really really nice. then next summer will do some white water rafting up there. that ought to be fun.

you might be wondering what will happen to the business that i am working at. i may have mentioned this already, but he is going to put me in charge of running the business. yippee. they were going to sell it, and they still might, but there are more benefits for them, if they keep it up and running. which i hope i can do....i know i can. and there is going to be more money in it for me....again yippeee....

as for my health. well they have scheduled me again for another doctor. in the last 3 visits to the clinic i have seen 3 different doctors. irks the hell outta of me. but i do get my bloodwork back next time. i see a doctor this week, so i will get back on here and tell ya about the latest counts.


as for other news, well the country i am convinced is going to hell in a hand basket. there was this outrage about bush not responding to katrina and his crony that was in charge of FEMA. well that bonehead got there when the confirmation committee accepted bush's nominee. they all voted for him. so congress should be somewhat to blame as well. george w does not know how to govern and the rest of the country put him in there for another 4 years. GOD is there no common sense in the frickin country any more. we need a regime change here at home. please help the red cross or any other charity for the folks in gulf area.


well enough from me. i was glad i got to see new orleans this year. i plan on going back next spring for the jazz fest, if they have it.

i have been quite busy this summer. lets see i went to new orleans, twice in may, in lousyville in july and then the keys in august and now asheville in september. i have decided to go back to lousyville for a visit. i will be up there for zoe's anniversary in november. stay tuned...


well much peace and love to all out there..today i am hosting a positive connection day out for socializing. we are going to be bowling. my idea. will let you all know how it turns out.

for now peace out....rev. vernon.

Sunday, August 28, 2005

well not much happening here. i wanted to let you all know that i am doing better. i am like they say, getting stronger with each passing day. for some reason or another, i was kinda blue last week. not sure why. besides i hate the month of august. i got sick in august of 94. so this month always has sucked.

as for other news. well i have been on the yahoo singles, off and on since january. with little success. and i have had like 4 or5 russian women contact me. now it always got down to me asking them, if they are serious about coming to america. and then i ask if they need money. i am no dummy and would never send any money over there. well the latest young lady who has contacted me is also very pretty like they all have been. i always picture some hairyfat russian man on the other end. well like i said this latest is very nice looking. and she even called the house on friday. kind of blew me away. i got home to that message on friday. kind of made my day. this is one guy who would go for a russian mail order bride. not that i like the notion of going shopping for women like they are merchandise, i don't agree with that, but we met through the personals. so any way. i will keep everyone abreast of details.


much peace and love, capt. cos. xxx

Thursday, August 25, 2005

well i am back for another hurricane weekend. lol. i am doing not too bad. looking for some body who likes nascar and fatness. lol. my new little saying is pww. for pasty white women. pww. i know i am going to hell already. i say to myself in my head, another PWW. or NCWW. and that is nascar, christian, white woman. so i dont like those either. NCWW. when will i learn.

other than that. i am doing alright. wuz hoping that katrina would give us some business. but she looks like she will make landfall in the panhandle. again mikey loses. meaning i will have to work tomorrow. some folks were out tonight like they were in for a snow storm tomorrow and that work would be called off. like me. lol. no luck. just like the snow storms up north, this storm missed bradenton and will cause trouble elsewhere. such is life. i am home at least from another ladies nite and going to bed with katrina just off shore and looking to make landfall in the handle area. i hope it stays that way over nite.

much peace and love to all. capt. cosmos..

Monday, August 15, 2005

well hello world. i am off to the keys this weekend. yippeee.. things are not too bad. i am going down with the group that i went with to new orleans, so maybe keep your fingers crossed. i picked up some scuba gear this weekend, so i am going to be doing some diving, at least some snorkeling this weekend.


not much else is happening. we are slow at work...but life is good.

peace and love to all. capt. vernon.

Thursday, August 11, 2005

another thursday nite @ the club. i am sweating like i am in heat. nice dance nite. and i shot pool, not soo bad. i made it home by 1230am and ready for another day of selling roofs. i am off to the keys next week. i can not wait. i think, that 1 could lose themselves at the keys, at least that is what i hear.....first timer for me. me and bryan went down to key largo in 1991, but we only stayed 1 day. probably due to me with no money.. different story these days....here is hoping that i make it home with a mermaid. wouldn't that be nice for me....well peace and love to all....i am still rockin on thursday nite...hello sally @ uofl. hope you see this and smile. called you lately, but no answer. come on down on labor day weekend. we are having an orgy....lol. not really but i am going alone for the keys. no baggage....lol... still love ya, call me.... rev. vernon and capt. cosmos both signing off.

p/l

Monday, August 08, 2005

well i started this blog with the news that i was going to be on structured treatment interuption. well today marks the day that i am going to start taking drugs full time. that is my hiv drugs. starting with a new 1 today and there was no bad side effects, so far. i made it through the day. and not much else has changed. i am still working out at the gym...still eating dinner alone at home. lol. work is not too bad. my tcells at last count was 201 and my viral load is at 5432 or something like that. i saw the man doctor last time...not good. this doc does not know me and talks at me...not with me. i will never see him again...that is for sure. i just do not like him. then he cuts my sleep drugs in 1/2 for nigth sleep. he did not ask me how i am sleeping....no talk about it either. i was really upset about seeing a different doctor. i felt that they (the clinic) is fucking with my life that way. i do not like it...and will hopefully not see him again..


i have not heard from any one up north. especially miss 1 ho. she called once, but honestly i did not pick it up. i do not like confrontation and try to avoid all that shit. life is too short to stay angry or upset with any one person in this life.

well much peace and love to all who may read these pages....rev. vernon.

Friday, July 29, 2005

well the capt has been found. i am doing alright. sorry i have not been on here for a very long time. i am currently staying at my sisters house and watching my niece. she is about to turn 18 in 2 weeks. so she don't need much watching. lol. her friends on the other hand....lol....

my counts as of late. well here they are on july 2 i gave blood, i think or that was the last time on the counts i saw. my tcells are 201, 1 above being AIDS classified. whoopy... my viral load is only at 5435. something like that. i have been off meds since last october, so i think that is a very good thing to have. i was kinda glad to see those numbers. i saw them while at my counselor appt. i also gave my counselor her walking papers. i told her that i can now see life with out her... and i am doing alright. if we are ever doing alright in this life.


i have been selling my ass off. this past week i sold this big ol commercial jobs. it was sweet. big pay day next week....i should get the girl...lol.

no one in my life at this point. i am going to the keys next month for a 4 day weekend. with the same group from new orleans. maybe not the same people, just the same ASO... i am also in the beginning stages of getting a chapter of that group established here in Tampa bay area. we are possitiveconnections.org Tampa bay area. we have social every month that includes doing a social in one of the 7 counties in this area.


well football is about to start. and that always bring this area to it's feet. and the cards are playing down here this september. they play USF on the 24th. yippeee. can not wait to be in that crowd with all RED on...lol. hopefully all predictions will come true for the cards in both football and basketball this year. it is an exciting time to be a cardinal fan. i am sure i would stay drunk most of the year, were i in town. makes missing lousyville that much better.

also bad time to be in the nasa business. as you mite be ab le to tell that i am a big space fan, from the name. i am sadden that the shuttle era is at en end. i was there in the beginning. remember that the launches were as exciting as the apollo launches. but it is, i feel, well past the time that we should have another plan. we need to continue to put man in space. and we will. i hope.. .... i would love to be launched into space. but my stomach would not handle it.

well i have yak enough for now. i hope to be on here again this week. i see the real doctor on tuesday and will have a better handle on what is happening to me. i mite or mite not begin meds again. stay tuned. much love and peace to all. rev. vern.

hello 1 ho. call me if you read this...i still love you and miss you...another heartbreak in lousyville...p/l

Friday, July 08, 2005

well it has been way too long since i have been on here. here is an update from the road. i just got back this past wednesday night from louisville. i took my niece there for her graduating high school. she graduated a year early due to her smartness. we had a good time. it is always good to be in louisville. did not get to see several people. there is just not enough time. i might be going back next month. who knows. i got all my shit out of storage and i continue to go through the huge pile of memories. i might have to put some in storage down here after all. i was trying to avoid doing that down here at least. life is not too bad. i had my moments and still do going through the pics mostly. i got all my big framed art on the wall. was not sure i had the room for it. but it worked out.


as for my health, well i am still not taking any meds. my doc took blood last month and i see her on 25th of this month. they did a genotype test on my virus and it turns out that my virus is still sensitve to all the meds on the market. my doc was a little shocked at this, since i have been doing what i have been since last october.

i feel fine and will have to change my ways soon when i start the meds. i am sure i will begin them again this month.

then i have a friend from POZ moving to gainesville next week. i might go up there for a night or so. i have never been to gainesville. it is the home of the gators, for those who did not know. also the cards play south florida down here this fall. like in 2 months or so. i can not wait for that. i see big dave again next thursday. i will enjoy that, of course.

well peace and love to all. rev. vernon.

Thursday, June 23, 2005

well it has been like 2 weeks since i have been on here. not much is happening. i see doc next week on the 28th, still off meds...will see what she says next week. then i am off to lousyville next thursday to get my shit out of storage finally. i am taking my niece up there with me. we will have a great time. and see some of the fine folks that are still living there.

it is the rainy season down here and you can set your watch by it. also my friends are here from lousyville and we are off to deep sea fishing next week. i think. if i can stomach it. i am a major chummer when i get out on the water.

well today val was in the paper. she is way too beautiful. wish she would look my way. well i am not giving up. she was interviewed for HIV testing day. that day is on monday, so get the test and know your results. not much else is happening. i am making it down here and seem to be a little more at ease with living down here. i have my routine. i go to work then off to the gym and this being thursday that can only mean 1 thing. ladies night. so i will be going out tonight to do some dancing.

well much peace and love to all. rev. vernon.

Saturday, June 11, 2005

i did not realize i have been off of here for about 2 weeks now. well not much to report on down here. i almost went back on therapy this week. but changed my mind to until i see my regular doctor. she has me giving blood this month and then seeing her next month, late. i got into the home delivery of meds for persons like me on disability. and they delivered them last night out of the blue. but they were prescribed by another doc i saw breifly when my voice was not working. i think i mentioned this or so. well i thought that i will continue to see my female doc. doc sue. i feel fine and did not want to start chemo at this point in time. so i am going to see what my blood says and see what she has to say. i my lactic acidosis levels were still a little elevated. something the male doc did not take into account, i think. they were at 14mm last time, but this time they went up to 16mm and that is off therapy. so i do not want to pollute my body just yet.

today i am off to meet with the local yahoo singles group. we are meeting to play some pool here. first time i have made contact with them, or met them out. nice day, kinda windy due to hurricane that was out in the gulf. we just got a lot of rain. good for the roofing business though.

other than that...my best of bestest friend is coming into town next weekend. so i will have some to hang out with. no way...how will i act....lol

well i can not wait, we will have some fun at seista key.

much peace and love to all out there. capt. vernon signing.

Tuesday, May 31, 2005

hey i am back from new orleans again. had a wonderful time and met some wonderful people. i hope to be life long friends of these people. they were really nice and it was another thing to be in company of people who are going through the same thing as me. i am so used to being the token hetero in a group setting. to be in a setting where everyone was positive and hetero. it was just really nice experience.

on the other hand. i am supposed to be starting therapy soon. but the delivery service told me today that they are just planning on submitting my application today. i thought for sure that they would have done that since i was away. i had the visit from the delivery person last week. and today i talked to him and he mentions that they are just today submitting my app. i just think that is more BS from the system down here in FL. stay tuned. i was tired last night and came home a day earlier than plan. but it was raining and nasty in new orleans for monday. and i went back to work today, so it is all good.

well peace and love to all. rev. vernon. captcosmos

Wednesday, May 25, 2005

night before new orleans again. i hope i behave myself. i am sure i will. i will be in mixed company, so i think i know how to handle myself. i am really looking forward to it. going to the art musuem first tomorrw. i get in too early to get into my room. i get in like 730am, but this is only at the airport.

anyway not too much else happening.

i think 1 ho is mad at me or so. i sent her a package and again i expressed my feelings.

no response.

peace and love to all. rev.vernon.

Monday, May 23, 2005

today i am writing with out the splint on my finger and it does not hurt that bad. real quick note to say or tell everyone that i got some blood work back tonite at my counselor appt. the geno type testing on my virus showed that my virus is still reactive to all types of meds on the market. i have been off therapy now since last october, 2004. and now it is may, or the bloodwork as dated may4, 2005. so that is good news. my virus is not a mutant. so far.

more blood results tomorrow. also see the finger doc. maybe he will tell me i am ok to take the splint off.

until then. peace and love to all. rev. vernon